Our year in Tulsa,
Oklahoma was my senior year of high school. We'd moved there to be
near the Southwestern Regional Medical Center for my brother's
treatments, and Mama decided I could try taking classes online
instead of joining a new school. She never figured out that Thomas
and I would chat with each other over the internet during the hours I
was supposed to be studying in the public library, and he was
supposed to be resting. I wasn't highly motivated to complete my
studies.
One night Thomas
and I were watching an episode of Glee. It was in its first season
that summer, and I was debating whether or not I liked it so I
pressured him into watching it with me to get his opinion. Halfway
through the second song, he lost interest. “Did you finish that
essay yet?” he asked.
“What essay?”
“Your history
essay. Isn't it due tomorrow?”
I shrugged and
turned the volume up, but he became angry as suddenly as the summer
showers we used to have in Florida. “Julia, why haven't you been
doing your homework? Mom's worried that you're not going to
graduate.”
“Look, you get to
take time off while you're getting better so don't even try to
lecture me about my schoolwork, kid.” My sharp words glanced off of
him like the nerf darts he used to shoot at me when we played cops
and robbers.
“I wish I could
keep up. I'm going to be at least a year behind, Jules. At least.”
I'd rolled my eyes.
“Exactly, so it's not very fair of me to continue without you,
right?”
He punched me in
the arm. “It's not very fair of you to use me as an excuse for your
laziness.”
“It's not very
fair that you're sick.” I hate to admit it now, but I full-on
pouted, arms crossed, chin tucked in an effort to hide my tears from
him. I'd sworn to myself that I was going to be tough for him, but as
usual my kid brother had to teach me what it meant to be strong. It
started when we were in elementary school and he broke his arm. I'd
been the one crying, and he'd calmly sought our mom.
He'd never known
how to react when I got upset, so he laughed it off. “Sick of
musicals. How many more episodes are you going to make me watch?”
“All of them.”
In the end, he'd finished the season with me and I'd finished high
school. I'm not sure he really paid any attention to the actual show,
since he usually had his laptop open on his knees. I wondered on
occasion if social networking was not somewhat to blame for Thomas's
failure to make new friends in Tulsa. He was in constant contact with
everyone from home, so he never bothered to branch out. Then again,
he didn't have much opportunity in between chemo sessions for
football games and parties. Some days he was too exhausted even to
type his own password in. I started answering emails and Facebook
messages for him after the second month of treatments, carefully
recording his dictations, even mimicking the smiley faces he liked to
use.
I would scroll
through the newsfeed and read statuses to him. “Do you know this
woman? She said, 'Finally got that long-awaited raise!' with three
exclamation points. 'Celebratory glass of wine with the hubby!' ” I
turned the screen for Thomas to see from where he was propped in the
recliner.
“Not sure who she
is. Can you like the status anyway?”
The next was
similarly ecstatic. It read, “Diploma? Check.” 37 people had
already liked it, so we had to be original. I typed, “Congrats! Got
a job yet?” I already knew he did because his status a few weeks
before had announced it, but part of our Facebook policy was to never
admit to knowing any information unless there was proof we'd read it
in the form of a “like” or a comment. It was the same principle
my brother had employed when he pretended not to have eavesdropped on
my phone conversations unless he had something to add to the
discussion. This invasion of my privacy used to be my greatest sorrow
in middle school.
Thomas lost
interest so I scrolled through the updates on my own, pausing to look
at a picture of a hand. Or rather, I was looking at the diamond
decorating the fourth finger. The photo was captioned “He
proposed!” The first comment underneath was “And she said yes!”
Others had posted things like “Omigawd, look at that rock!”, “So
cute!”, “So when's the big date, gorgeous?” and “Y'all are
precious!” There were seventy-five similar responses beneath these.
I quit reading.
A red flag appeared
at the top of the page to notify me that my brother's best friend
from middle school, Alex, had added four new photos to his album
Family. For old times' sake, I rifled through them and discovered
that he was now an uncle. Apparently, he'd also broken his leg
falling off of a ladder the past weekend while hanging Christmas
lights. His wall was decorated with well wishes and encouragement,
seasoned with jokes about his mishap. I added a generic, “Man, that
sucks. Maybe Santa can bring you a better sense of balance.” It
seemed like something Thomas would say.
My dad came in
while I was responding to some messages from Thomas's high school
friends. My brother had chosen not to broadcast his disease to them,
so they thought the reason we'd moved was for my dad's job. Which I
guess wasn't a lie as much as it was an exaggeration. Dad's a piano
tuner, so he can find work almost anywhere. It took a long time for
people to learn your name, though, and in the meantime the only
parttime work he could find was as a bus driver for the local school
district. That year was when he first started balding. Thomas liked
to joke that Dad was just trying to make him feel better about the
effects of his chemo treatment on his own hair.
“What are you
kids up to? Oh, he's asleep.”
“Yup.”
He leaned over the
back of the coach to see my computer screen. I automatically tilted
it to obscure it from his view, not because I had anything to hide
but because his curiousity about my activities irritated me. “My
Face?”
“It's Facebook,
Dad.”
He laughed. “I
can't keep all those websites straight.”
“If you get an
account like Thomas keeps telling you to, you might could build up
your clientel a little bit. Network, you know?”
“Maybe I'm
old-fashioned but I don't know about advertising your life on the
internet like that. Seems tacky. A bit like proposing on the big
screen at a baseball game, right?” He winked at me. It was
something Mama had never let him live down.
I shrugged.
“Maybe.”
~~~
Thomas made Mama
tell me when he decided to stop receiving treatments. She tried to
explain that he wasn't improving, and the treatments just made him
feel worse. He'd talked about it with my parents, with the doctors,
with everyone but me. He wanted to have as normal a life as possible.
What about as
long of a life as possible? That was the question I kept
repeating to myself as I furiously fled the house, as I sped down the
highway in my dad's jeep, as I sat in the parking lot of a
long-abandoned gas station and sobbed against the steering wheel, as
I pulled back into the garage late that night. Only Mama was still
awake, and she met me at the door to wrap her arms around me.
“Oh, Jules.”
“He can't give
up.”
“He's not,
sweetheart. He's teaching us what it means to be strong.”
Thomas and I
only talked about it once. I was half-heartedly working through some
homework when he called my name. I expected him to ask me to check
his Facebook, because it had been at least a week since we'd
responded to his friends, but instead he said, “Can you read to
me?”
“Sure.” My eyes
flitted to the book in his hands. It was a leather-bound Bible that I
didn't even know we owned. “You want me to read that?”
He lifted an
eyebrow at me like he always did when he was amused at my reactions.
“I have to believe in something, don't I?” I didn't return his
smile.
“Where should I
start?”
“I think there's
a Thomas in there somewhere. Start with him.” I ended up having to
google it because I had no idea there was a story about doubting
Thomas, and if I had known I wouldn't have been able to find it. We'd
been to Mass on and off as kids but neither of us had paid attention,
and we never had First Communion or Confirmation. My parents had
outgrown their religious phase by then.
I finished reading
and found my brother watching me. “Aren't you scared?” I
regretted the words before I'd even finished asking them. I thought
he would laugh the question away but he thought about it, gazing at
the ceiling.
“Yeah. Sometimes.
Mostly I try not to think about it. It doesn't seem possible, that
this could end. You know?”
I knew.
~~
Even a week after
his funeral, it didn't seem possible. That there could be an end to
my brother. His room looked exactly like it did while he was still
living in it, his bed still unmade. I sat on the floor and leaned
against it, closing my eyes and focusing on the smell of his pillow.
Sweat and his shampoo.
As the light
outside faded and the room grew darker, I noticed a pulsing green
light on his desk. We'd never bothered to turn his laptop off. I
crawled through the dark to see what he had left unfinished, but
there were no windows open. The emptiness was too much, so I opened
an internet browser and found myself staring at the Facebook login
page.
What could it hurt?
I typed his
password in. He had three unanswered messages from friends back home
ignorant of his death. Reading through the cheerful messages I felt
oddly comforted. They asked mundane things, like “Have you seen
that new movie yet?” or “How's school going, man?”
I began to sort
through his newsfeed, to check up on the people we used to stalk
together. There was a status update about the foreclosure of
someone's home. I found a note written by a friend who'd married
young addressed to her ex-husband, posted for public viewing as
though it were a work of art in a museum. Yet another announced that
they had just been diagnosed with cancer, and invoked prayer from
their friends. The day Thomas was diagnosed with leukemia was the
second worst day of my life. I didn't take the time to read
everything on the woman's wall. It would be too familiar.
Somewhere around
two a.m. I stumbled upon the introduction to a very long suicide note
someone I barely knew had posted. They'd actually created an event
for anyone who wanted to witness the planned overdosage. It was to
take place next week. On the one hand, I was horrified by the mental
state of this stranger. The rejections he'd faced, the fear of
failure that plagued him after he lost his job for the second time,
the prospect of years alone. On the other hand, I felt mildly
irritated that he'd passed his burden on to me. It seemed selfish, to
impose your problems like that. Don't people have enough to worry
about?
I declined the
invitation, but read through some of the responses others had
plastered onto the event wall. “Chin up. Tomorrow will be better.”
“Don't give up on life! It's a precious gift. Don't waste it.”
Some had posted Bible verses, others had shared core tenets from
other religions. “Desire is what causes pain. If you can rid
yourself of desire, you won't feel that pain anymore. Then you will
reach the supreme state of being: nothingness.”
If I were planning
on killing myself, these posts wouldn't have changed my mind. I think
I might have chosen to move the date a few days earlier to give
people less time to type useless Hallmark movie lines on my wall. But
there were other comments, too. Things like “It's about time” and
“Got any extra meds for me?” Someone had even offered to video
the death and upload it later for those who couldn't make it.
There is such a
thing as going too far. I closed the entire window and shoved back
from the desk, plunged into darkness again. Goosebumps spread up my
arms like a coffee stain infecting fabric. This person might be dead
in a few days and there was little I could do to stop him. He might
kill himself, and I'd know about it beforehand. By typing a few
characters into a text box, I could interact with someone miles away
and influence a life or death decision. Would I be responsible?
What was wrong with
them, encouraging someone to kill themselves? Who thought it was even
a little bit okay to film the event? And what kind of moron thought
the cheerful tone of their brief post could preserve someone's life?
Nothing I had done, none of the effort my parents made, none of the
doctors and the latest technology had been enough to save my
brother's life. How foolish to think that a semi-colon and a right
parenthesis could inspire hope.
Words, words,
words. He would get them as a reward for his end. Words graffitied on
his wall, plastered like paper maché. Thin and fragile, glued on by
sticky chubby fingers. More words than Thomas's obituary in the
newspaper was worth. Four hundred and fifty characters. That was all
that summed up his life, his death. Not fair. I wanted to
scream it.
And no one reads
newspapers anyway, these days. That was why his friends kept writing
to him, oblivious. It was Thomas who had taught me the possibility of
the internet, of constructing truth. It was a self-fulfilling
prophecy. False beliefs are true in their consequences. He fabricated
an alternate life in which he wasn't sick. He'd protected his friends
from the truth. He'd taught me what it meant to be strong: to create
your own reality.
As I calmed down, I
woke Thomas's laptop up again and reopened the message from his
friend, Alex. I'd been my brother's secretary of sorts all this time.
Couldn’t I continue my job? No, I should. It was my duty. So I
began typing a response. It was the only way I knew to repay my
brother for the possibilities he'd taught me. I could prolong his
existence by creating a new reality in which he'd lived the life that
was taken from him, in which he grew up and finished high school and
started dating. I could do what the Southwestern Regional Medical
Center couldn't do, what all the dreamers who chased after the
fountain of youth had never figured out. I could make my brother
immortal.